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Dragi prijatelji!

Sa velikim zadovoljstvom i srca punih nade možemo da vas obavestimo da su naši zajednički napori i ogromna borba urodili plodom i da su početkom 2008. god. obezbeđena sredstva za jednu operaciju srca iz fonda Republičkog zavoda za zdravstveno osiguranje. Prema savetu Dr De Levala, Dr Tsanga i njihovog tima, odlučeno je da prvi bude operisan Janko. Operacija je sa velikim uspehom izvršena 29.01.2008. godine u Londonu, na Harley Street klinici kako je i planirano. S obzirom na zdravstvenu situaciju, odlučeno je da se Andreino stanje pomno prati u narednom periodu, kada će pomenuti hirurški tim proceniti kada je pogodan momenat za operativni zahvat. Nama preostaje da se, sa puno nade i nesmanjenom žestinom i voljom borimo i dalje da i Andrei obezbedimo podjednaku šansu za normalan i srećan život. Iskreno se nadamo da njoj Republički zavod za zdravstveno osiguranje neće uskratiti to pravo. Ovim putem se zahvaljujemo svima koji su na bilo koji način pomogli u našoj brobi da istrajemo u poduhvatu koji znači život.

26.02.2008.god.

THE TIME FOR OUR LIFE SAVING HEART

OPERATIONS IS RUNNING UP

 

After medical investigations in London this summer, my sister Andrea (18 years) and I, Janko Kolacek (20 years), have received an invitation for continuing heart operations on 27th November 2006. (in enclosure). After many palliative operations (three for each of us) we met an opportunity to have our lives finally saved by inserting restrictive conduits and to keep up with our generations living normally, without fear and physical restrictions. We walk with more difficulty every day and struggle waiting for life saving operations. Unfortunately, after our struggle for existence, which is lasting for decades, and in front of very healing, institutions of our country simply had written us off and turn their back on us, throwing away all past efforts and financial costs, as if it is not a matter of human lives. Our request for paying costs has been rejected by our Health insurance institute with interpretation that our diagnosis is on negative B list of that institution, although all previous operations have been made with their approval. That inhuman, “black” list has been made by that institute with only one criterion - to save the money and is presenting flagrant offending of basic human rights for equal chance for medical treatment.

We thank everyone for all support until now and ask donators to respond with their donations as soon as possible, because, despite all enormous efforts by all generous people, requested amount of 60.000 GBP is still unreachable so we had to cancel previous appointment. Our sand-glass is turned around and there is not much sand left. We are facing with great uncertainty and the time is running up mercilessly. Cardiac surgeon team: Dr.de Leval, Dr.Mr.Victor Tsang, Dr.J.Deanfield in The Harley Street Clinic in London, who are planning to operate both of us encourage us to hang on and expect us to ask for another appointment and not loose battle for time. Total amount of 60.000 GBP is to be deposited before admission for both of us.

How can you support our struggle, almost two decades long? You can provide financial support and contribute with your donations. This amount is attainable for us, and collected money can be used only for the purpose mentioned.

 

With regards and gratitude for your support,

JANKO AND ANDREA KOLACEK

VREME ZA NASE SPASONOSNE

OPERACIJE SRCA ISTIČE

 

Posle letošnjih ispitivanja u Londonu, moja sestra Andrea (18 god) i ja Janko Kolaček (20 god) smo dobili poziv za nastavak operativnog lečenja srca 27.novembra 2006 god (dato u prilogu). Posle više (po tri svako od nas) palijativnih operacija dočekali smo mogućnost da nam se život spase ugradnjom restriktivnog konduita i da konačno uhvatimo korak sa našom generacijom, živeći normalno, bez straha i fizičkih ograničenja. Sve teže hodamo i sve teže podnosimo napore u isčekivanju spasonosnih operacija. Nažalost, na samom kraju višedecenijske borbe za opstanak, pred samim izlečenjem, institucije naše države su nas jednostavno otpisale i okrenule nam leđa, bacivši sve dosadašnje napore i materijalne troškove u vetar, kao da nisu u pitanju ljudski životi. Naše molbe za odobravanje sredstava za pomenuto lečenje su odbijene od strane nadležnog Zavoda za zdravstveno osiguranje, sa obrazloženjem da se naše dijagnoze nalaze na negativnoj B listi te ustanove, iako su sve dosadašnje operacije urađene sa njihovim odobrenjem. Pomenuta, nehumana crna lista je stvorena od strane te ustanove, jedini kriterijum koji je pri tome korišćen je isključivo ušteda novca i predstavlja grubo kršenje najosnovnijih ustavnih i humanih ljudskih prava na ravnopravnu šansu za lečenje.

Zahvaljujemo se na dosadašnjoj podršci i molimo donatore da se što pre odazovu sa prilozima jer, i pored velikih napora svih plemenitih ljudi velikog srca, tražena suma od 60.000 GBP je još uvek nedostižna, tako da smo bili primorani da otkažemo prethodni zakazani termin. Naš peščani sat na srcu je okrenut i nema još mnogo peska. Ušli smo u neizvesnost i vreme nam ističe neumitno. Kardiohirurški tim, Dr. de Leval, Dr.Victor Tsang, Dr.J.Deanfield na Harley Street klinici u Londonu, koji planiraju da nas operišu, nas ohrabruju da istrajemo i očekuju da zakažemo što pre novi termin, da ne bi izgubili bitku sa vremenom. Celu traženu sumu od 60.000 GBP za nas dvoje potrebno je uplatiti pre prijema, kao što se vidi u prilogu bolničkog paketa.

Kako možete podržati našu borbu dugu skoro dve decenije? Možete uputiti finansijsku podršku i učestvovati sa vašim donacijama. Ova suma je za nas nedostižna, a sredstva se mogu koristiti samo za ovu namenu.

 

Od sveg srca Vam se zahvaljujemo na pomoći,

JANKO I ANDREA KOLAČEK

 

 For that purpose we have opened the following bank account for abroad donations:

Za ove potrebe otvoreni su sledeći računi:

 

 

NatWest bank 332 High Holborn. Chancery Lane and Holborn branch, London WCI V7PS. tel: +44(0)845-605-1605

external telephone: +44(0)8453030912

GREAT BRITAIN

Bank code 60-40-04 , AC. No: 31547907

AC.TITLE: MR.BRANISLAV.SIMOVIC, RE. JANKO AND ANDREA

12 Barnstaple Mansions, 27 Rosebery Avenue

London, EC1R4SN

SWIFT CODE: international bank account number (IBAN)

IBAN: GB22NWBK60400431547907

IBAN BIC: NWBKGB2L

 

BANCA INTESA:

Žiro račun: 908-16001-87

Dinarski: 51-102-0000236/7

Devizni: CS73-160-5130200023888-52

25 August 2006

 

Professor John Deanfield

Department of Cardiology

Great Ormond Street Hospital for Children NHS Trust

Great Ormond Street

WC1N 3JH

 

 

Dear John

 

Re KOLACEK siblings

 

At last I have reviewed those films with Victor, and Ian Sullivan was also present during this discussion.

 

Andrea KOLACEK (dob 03.05.88).   This is an eighteen year old girl who has a pulmonary atresia, ventricular septal defect, multifocal blood supply, for which she underwent a right modified Blalock-Taussig shunt, a left unifocalisation with connection of an anomalous left upper pulmonary vein to the left atrium, and a central shunt.   Her saturation on air is 80%.   She has a central pulmonary artery with relatively low pressure.   In addition, there are at least two MAPCAs perfusing part of the right lung.

 

We thought that the best for her would be to use a restrictive conduit between the right ventricle and the pulmonary artery to improve the cyanosis, and then to restudy her and decide whether one should try to connect the right collaterals to the central pulmonary arteries;  and then, at a later stage, see whether the central pulmonary arteries perfuse enough segments at a sufficiently low pressure to contemplate a radical repair.

 

 

Janko KOLACEK (dob 10.09.86).   This twenty year old man has also a pulmonary atresia, ventricular septal defect and MAPCAs, for which a direct aortopulmonary connection was created in (probably) 1988.   In 1989 he underwent a right modified Blalock-Taussig shunt with unifocalisation.   Now the angiogram shows central pulmonary arteries with a severe stenosis at the origin of the left pulmonary artery.   The pressure distal to that stenosis on the left side is 37/29 mmHg, mean 32 mmHg, whereas the pressure on the right side is at systemic level.  

Here again we thought that the best would be to place a restrictive conduit between the right ventricle and the pulmonary artery and occlude the right sided BT shunt at the time of surgery.

 

Yours sincerely

Marc R de Leval MD FRCS

Professor of Cardiothoracic Surgery

 

(Dictated by Professor de Leval and signed in his absence)

 

PS           I will keep the films in my office unless you tell me that you want them back.

 

cc            Mr Victor Tsang, GOSH.

 


 

THE  HARLEY  STREET  CLINIC

35  WEYMOUTH  STREET,  LONDON W1N  4BJ

Telephone +44-20.7935.7700.   Facsimile +44-20.7487.4415

 

CONGENITAL  CARDIAC   SURGERY  PACKAGE

 

NAME: Janko KOLACEK, d.o.b 10.08.86

 

DATE OF ADMISSION: 27th November 2006

 

OPEN-HEART SURGERY PACKAGE (12 days)

11,235.00 GBP

 

PROFESSIONAL FEES (to include surgeon, anaesthetist, cardiologist and catheter anaesthetist)

 

6,500.00 GBP (approximately)

CONDUIT

5,000.00  GBP

 

 

TOTAL  AMOUNT  TO  BE  DEPOSITED  BEFORE  ADMISSION:

(If there is a credit balance due at the time of discharge, this will be refunded)

        30,000.00  GBP

 

 

                                                                                   

---o0o---

The package is for a maximum 12 day stay. There will be no refund (from the 11,235  GBP) if the patient is discharged earlier than the twelfth day (the date of discharge will be defined by the surgeon and cardiologist when the patient is fit to leave hospital).

 

Additional days are charged at the following rates:

            Intensive Care Unit  =  2,360  GBP.         Ward  =  775  GBP.

 

Charges not covered by the package price include:  NHS blood handling charge;  valves, pacemakers and prostheses;  take home drugs (TTOs);  personal items (for example, telephone calls).   Charges for these will be made on discharge from the deposit.

 

The child’s mother will be able to stay (free of charge) except when the child is in the Intensive Care Unit (this applies to children under the age of 16).   However, the family must arrange a hotel in advance for the father and other members of the family, and the mother will move to that hotel when the child is in the Intensive Care Unit.   Details of hotels nearby can be obtained from: Admissions Department, Harley Street Clinic (telephone: +44-20.7935.7700;  fax +44-20.7486.0992).

 

---o0o---

 

When depositing the money in advance it is most important that the name of the patient is clearly stated.   Details of bank account for depositing in advance:

 

            Name of Bank:                        Barclays Bank

                                                            Swiss Cottage and St John’s Wood Branch, London

            Bank Code:                            20-74-63

            Name of Account:                   Harley Street Clinic

            Account No:                            80933279

            Reference:                              PC/........please insert patient’s name here

 


 

THE  HARLEY  STREET  CLINIC

35  WEYMOUTH  STREET,  LONDON W1N  4BJ

Telephone +44-20.7935.7700.   Facsimile +44-20.7487.4415

 

CONGENITAL  CARDIAC   SURGERY  PACKAGE

 

NAME: Andrea KOLACEK, d.o.b 03.05.88

 

DATE OF ADMISSION: 27th November 2006

 

OPEN-HEART SURGERY PACKAGE (12 days)

11,235.00 GBP

 

PROFESSIONAL FEES (to include surgeon, anaesthetist, cardiologist and catheter anaesthetist)

 

6,500.00 GBP

(approximately)

CONDUIT

5,000.00 GBP

 

 

TOTAL  AMOUNT  TO  BE  DEPOSITED  BEFORE  ADMISSION:

(If there is a credit balance due at the time of discharge, this will be refunded)

         30,000.00 GBP

 

 

                                                                                   

---o0o---

The package is for a maximum 12 day stay. There will be no refund (from the 11,235 GBP) if the patient is discharged earlier than the twelfth day (the date of discharge will be defined by the surgeon and cardiologist when the patient is fit to leave hospital).

 

Additional days are charged at the following rates:

            Intensive Care Unit  =  2,360 GBP.         Ward  =  775 GBP.

 

Charges not covered by the package price include:  NHS blood handling charge;  valves, pacemakers and prostheses;  take home drugs (TTOs);  personal items (for example, telephone calls).   Charges for these will be made on discharge from the deposit.

 

The child’s mother will be able to stay (free of charge) except when the child is in the Intensive Care Unit (this applies to children under the age of 16).   However, the family must arrange a hotel in advance for the father and other members of the family, and the mother will move to that hotel when the child is in the Intensive Care Unit.   Details of hotels nearby can be obtained from: Admissions Department, Harley Street Clinic (telephone: +44-20.7935.7700;  fax +44-20.7486.0992).

 

---o0o---

 

When depositing the money in advance it is most important that the name of the patient is clearly stated.   Details of bank account for depositing in advance:

 

            Name of Bank:                        Barclays Bank

                                                            Swiss Cottage and St John’s Wood Branch, London

            Bank Code:                            20-74-63

            Name of Account:                   Harley Street Clinic

            Account No:                            80933279

            Reference:                              PC/........please insert patient’s name here